If you have dementia, or you are looking after someone who has dementia, you are likely to face many practical issues in your daily life.
People with dementia can feel vulnerable as their condition progresses and they increasingly rely on other people to do things for them. It is important that people who have dementia feel reassured and supported, while retaining some level of independence.
Although some symptoms are common to many people with dementia, each person’s experience of the disease and how they cope with it will be different.
When a person with dementia finds that their mental abilities are declining, they’re likely to feel anxious, stressed and scared. They may be aware of their increasing clumsiness and inability to remember things, and this can be very frustrating and upsetting for them. If you are looking after someone with dementia, you can help them feel more secure by creating a regular daily routine in a relaxed environment, where they’re encouraged and not criticised.
Involving the person you look after in everyday tasks may make them feel useful and improve their sense of self-worth. They could help with the shopping, laying the table or sweeping leaves in the garden, for example.
As the illness progresses, these tasks may become harder for them to manage independently, and you may need to give them more support.
The main way you can help someone with dementia is by offering support sensitively and try not to be critical of what they do. It can be very important for the person with dementia to feel that they’re still useful.
In the early stages, memory aids can be used around the home to help the person remember where things are.
For example, you could put pictures on cupboard doors of what’s inside, such as cups and saucers. This may help to trigger their memory and enable them to retain their independence a little longer.
Many people with dementia will still enjoy their hobbies or interests. For example, if they like cooking, they may be able to help make a meal. Going for a walk or gardening is a simple way to get some exercise and a sense of achievement. Or they may prefer listening to music or playing a board game. Caring for a pet cat or dog can bring a lot of pleasure to some people.
If the person you care for was very sociable and outgoing, or if they have a large family, they may really enjoy visits from one or two family members or friends. However, they may struggle to keep up with conversations if they have a lot of visitors at the same time.
It’s important that the person you care for has a healthy, balanced diet and gets some exercise. The longer they stay fit and healthy, the better their quality of life will be. If the person you care for doesn’t eat enough or eats unhealthy food, they can become susceptible to other illnesses. People with dementia can become more confused if they get ill.
Common food-related problems for people with dementia include:
not recognising foods forgetting what food they like refusing or spitting out food resisting being fed asking for strange food combinations
Involve the person you care for. For example, if they cannot feed themselves, you could put the cutlery in their hand and help guide it to their mouth. You could also involve them in preparing food, if they are able to.
Try to stay calm. If you feel stressed at mealtimes, the person you care for will probably be stressed too. Make sure you have plenty of time for meals, so you can deal with any problems that arise.
Try to accommodate behaviour changes. It’s likely that the person you care for will change their eating patterns and habits over time. Being aware of this and trying to be flexible will make mealtimes less stressful for both of you.
If you think the person you care for may have health or dental problems, get help from your GP or dentist. You could also contact a local carers’ group to speak to other people who may have experienced similar difficulties.
If the person with dementia smokes, replace matches with disposable lighters to lower the risk of them accidentally causing a fire.
If the person you care for drinks alcohol, check if this is recommended alongside any medication they make take. If in doubt, ask your GP.
Incontinence can be difficult to deal with and can be very upsetting for the person you care for. It’s common for people with dementia to experience incontinence. This can be due to urinary tract infections, constipation causing added pressure on the bladder, or medication.
A person with dementia may also simply forget to go to the toilet, or may forget where the toilet is. They may also have lost the ability to tell when they need the toilet.
It’s important to be understanding, retain a sense of humour and remember that it’s not their fault. You may also want to try the following:
Put a sign on the toilet door, such as a photo of the toilet. Keep the toilet door open and make sure that the person you care for can access it easily. Make sure they can remove their clothes – some people with dementia can struggle with buttons and zips. Look out for signs that they may need to go to the toilet, such as fidgeting and standing up and down. Get adaptations to the toilet if necessary – you may be able to get these through a care and support needs assessment. If you’re still having problems with incontinence, ask your GP to refer you to a continence advisor, who can advise on things like waterproof bedding or incontinence pads.
People with dementia can become anxious about certain aspects of personal hygiene and may need help with washing. For example, they may be scared of falling when getting out of the bath, or they may become disorientated in the shower.
The person you care for may not want to be left alone or they may resist washing, because they find the lack of privacy undignified and embarrassing. Try to do what’s best for them.
People with dementia often experience disturbed sleep. They may wake up during the night or be restless. These problems may get worse as the illness progresses. People with dementia may also have painful illnesses such as arthritis that cause, or contribute to, sleep problems.
Some medication can cause sleepiness during the day and interfere with sleep at night. Sleeping pills can be used with care in people with dementia.
However, “sleep hygiene” measures are best for people with dementia – for example, no naps during the day, regular bedtimes, and avoiding alcohol or caffeine at night.
If you or a family member has dementia, you may find it difficult to stay positive. Remember that you are not alone, and that help and support is available. Talk to someone about your worries. This could be a family member or friend, a member of your local dementia support group, or your GP can refer you to a counsellor in your area.
It is important for a carer’s physical health and psychological wellbeing that they are able to take a break (respite) from care. Carers may also need respite care if they have to go into hospital or meet other important commitments. Friends, relatives and neighbours can provide respite care at home. You can also arrange home respite care through River Garden Care or, in some areas, your local authority. Care away from home can confuse some people with dementia, both while they are away and when they come back. If you decide on respite care away from the person’s home, it is a good idea to visit beforehand to check that it meets the needs of the person with dementa.